FOR IMMEDIATE RELEASE
CHAADA / UNITE / COPES FOUNDATION / ICFDA
OPPOSITION TO THE MOTHERS ACT, S. 1375 / H.R. 20
THERE IS NO ESCAPING THE DANGEROUS REALITY OF
THIS BILL
March 3, 2008
Contacts:
Amy
Philo
amy@uniteforlife.org
214-705-0169 home, 817-793-8028 cell
www.chaada.org,
www.uniteforlife.org
Dr.
Ann Blake Tracy, Executive Director of the ICFDA
http://www.drugawareness.org/home.html
atracyphd1@aol.com,
801-209-1800 direct, 801-335-4727 fax
Camille Milke
sarinasvoice@aol.com
505-269-2286 direct or 505-213-0999 fax
www.copesfoundation.com,
http://www.drugawareness.org/home.html
Xavier Jones
xavierkjones88@yahoo.com,
214-573-3684
Recent Zoloft homicidal thinking survivor, and
mother of three
Kim Witczak
kim@woodymatters.com,
612-877-0570
Widow of a Zoloft Suicide victim (Zoloft was
prescribed to help Woody sleep when he started a
new job)
Theresa Smith & Drew Walker
rumshaker@comcast.net,
724-846-1078
Julie Edgington
give2manie@yahoo.com,
319-234-3584
Mo Kashmiri, J.D.
mokashmiri@gmail.com
Dr. Mary Ann Block,
M.D.,
http://www.blockcenter.com
817-268-3377
Dr. John Breeding, Ph.D. ,
JBREEDING2@austin.rr.com,
www.wildestcolts.com
Genita Petralli H.H.P., N.C., M.H. – Nutritional
Biochemist and Orthomolecular Practiitioner,
genita@greenbodyandmind.com,
818-919-1731
Dr. Fred Baughman, M.D., Neurologist,
fredbaughmanmd@cox.net
James B. Gottstein, J.D., President:
www.psychrights.org
Byron J. Richards, CCN,
www.wellnessresources.com
Mike Adams,
editor@naturalnews.com
Mathy Milling Downing
mathy02@aol.com,
310-926-4272
James Coy
james_coy30@yahoo.com,
606-365-1832
The
supporters of The MOTHERS Act have been engaging
for the past few years in an aggressive attempt
to pass an incredibly broad federal law which
will transform the U.S. market for
“antidepressant,” “antipsychotic,” and “mood
stabilizing” drugs from a voluntary pool of
patients who are encouraged by commercials to
seek help from their doctors, to a
government-sponsored screening program to select
patients who are deemed to need antidepressant
and other drugs from among the female
childbearing-age population. These promoters of
the bill have had vast resources and ample time
to obtain support and backing from the
legislators they have influenced. The bill has
passed the U.S. House, and needs approval from
the Senate, final agreement from the House if
any changes are made, and a signature from
President Bush. This could happen in a matter of
days or weeks.
The timing of
the impending vote on this bill in the U.S.
Senate is highly ironic in light of the
tremendous amount of negative news we have seen
on antidepressants and other drugs over the past
several months. It is especially shocking to see
it being promoted at a time when our society is
being terrified by frequent shootings and
murder-suicides which have been preceded by the
perpetrator’s use and sometimes improper
discontinuation of antidepressant drugs, and in
the wake of several notable celebrities’ deaths
which were the result of prescription drug
toxicity. The evidence against these drugs is
frightening, and the reality is that, if The
MOTHERS Act is passed, those who are the most
innocent and vulnerable and in need of
protection FROM these drugs will instead be put
ON these drugs, and placed in serious danger
from all of the negative drug effects -
including spontaneous abortion, a tenfold
increased risk of psychosis for postpartum
women, birth defects, suicide, and homicide
(yes, this is a listed antidepressant side
effect).
The bill
creates funding for development of new drugs at
taxpayers’ expense. Doctors will be under
greater pressure to prescribe drugs to pregnant
and postpartum women due to federal law which
would ensure the promotion of earlier
“detection” and “treatment.” Despite the fact
that the law admits that the causes of
depression or psychosis can vary between many
life situations and social realities, and
perhaps some unknown biological factors, and the
manufacturers’ own research (kept hidden for
years but recently revealed) shows that
antidepressants have no more benefit than a
sugar pill, the bill endorses drugs and
hospitalization as essential and necessary
treatment options. Many women who seek treatment
or reach out for help under this proposed
legislation would be under the watchful eyes of
the government rather than simply under the care
and guidance of their doctors or counselors. The
potential for creating violence, death, and
destroying families through the administration
of drugs combined with possible involvement of
police, CPS, and the courts, as well as the
invasions of privacy and individual freedoms
that this bill would ensure, must not be
accepted.
Since we
first issued our press release opposing S. 1375,
The MOTHERS Act on February 11, thousands of
people have been made aware of this bill, which
at one time flew way under the public radar.
Many people have come forward for the first time
with sad stories of personal harm caused by the
drugs, while a few others have, unfortunately,
gone on to continue their support for a bill
that threatens to bring about a dire and
dangerous situation, sacrificing life, family,
children, motherhood, freedom, and our future.
Some people
pushing for the bill have taken notice of our
efforts, and in response simply told the public
and the media that The MOTHERS Act is mainly
about “education.” That sounds so innocuous and
harmless that it’s nearly impossible for most
people to disagree with the bill if they have
not read its contents. But even if that were the
true purpose, or if the Senate were to rewrite
the bill and remove most of the negative
wording, leaving ONLY education as its goal, let
us consider this idea for a moment - what is the
impact of an education or awareness campaign
promoting certain psychiatric labels?
In a 1996
study cited by Dr. Grace Jackson in her book,
Rethinking Psychiatric Drugs, researchers
discovered that an awareness campaign in the UK
called “Defeat Depression” resulted in a
significant increase in prescriptions for
antidepressants, a change in physician practices
of increased willingness to prescribe, and a
large increase in agreement from the public that
antidepressant drugs are effective and should be
given to patients. Furthermore, to summarize
from a follow-up study in 2001, researchers
concluded that since there were still so many
people who favored alternative treatments such
as yoga, meditation and natural remedies over
antidepressants, “further efforts to improve
public knowledge about pharmacotherapy of mental
disorders [were] needed.”
Would passing
The MOTHERS Act in effect counter the ideas of
those who have wised up to the drug companies,
by creating a sense of legitimacy through
governmental drug endorsements? By promoting
earlier detection and treatment of postpartum
depression or psychosis, or depression in
pregnancy, it makes sense that we would see the
numbers of prescriptions for antidepressants ,
mood “stabilizers” (anticonvulsants), and
antipsychotic drugs significantly increase in
pregnant and postpartum women. This would be a
boon to the drug industry, which has had to deal
with the potential for decreasing sales since
the FDA issued black box warnings on SSRIs for
doubling the risk of suicide in 2004, and black
box warnings on anticonvulsant drugs for
doubling suicides just a few weeks ago. Eli
Lilly received a “Not Approvable” letter for
their new injectable Zyprexa application several
days ago. Also, a recent analysis of all studies
submitted to the FDA prior to approval of many
antidepressant drugs showed that the drugs
overall were no more effective than placebo, but
that most of the studies in which
antidepressants did worse than placebo were
never made public, or the results were
misreported.
With the truth stacked against the drugs and
against this bill, we have no option other than
to campaign vigorously against the passage of
The MOTHERS Act. There are many steps you can
take right now to help ensure its defeat and
safeguard our women, unborn babies, and the
innocent bystanders whose paths sometimes cross
those of people who commit crimes during altered
states while under the influence of prescription
drugs.
First, sign
our petition against the MOTHERS Act
http://www.thepetitionsite.com/1/stop-the-dangerous-and-invasive-mothers-act
Next, contact
the U.S. Senate and demand that they consider
the truth and stop this bill dead in its tracks.
For phone and fax numbers for the Senate please
go to
http://uniteforlife.org/senatecontactlist.htm
Please share
this information with everyone you possibly can
and urge them to act now.
Please also
read the addendum to this press release,
especially the excerpts which follow the links,
and feel free to forward this entire information
packet.
Sincerely,
Amy Philo
Founder,
www.uniteforlife.org
Co-Founder,
www.chaada.org
Survivor of Zoloft-induced homicidality,
suicidality, and psychosis during the postpartum
period
Camille Milke
Founder,
www.copesfoundation.com
New
Mexico State Director of the ICFDA (http://www.drugawareness.org/home.html)
Mother
of a victim of psychiatric drug-induced suicide
and grandmother to a now motherless child
Dr.
Ann Blake Tracy
Executive Director of the ICFDA
(http://www.drugawareness.org/home.html)
Author
of Prozac: Pancaea or Pandora? Our Serotonin
Nightmare
Xavier
Jones
Recent Zoloft homicidal thinking survivor, and
mother of three
======================================
Addendum
Blog and
YouTube channel for Julie Edgington, whose son,
Manie, was born with a life-threatening Paxil
heart defect… (Julie has 5 kids, 4 of whom are
healthy, but she took Paxil starting a couple of
weeks before she became pregnant, and continued
taking it during the first trimester of her
pregnancy with Manie, her 4th child,
because doctors thought it was safe. She finally
stopped the drug because it did not help and she
did not feel right about using it during
pregnancy.) You can also contact Julie at
319-234-3584 or email her at
give2manie@yahoo.com
http://www.bigpharmavictim.blogspot.com/
http://www.youtube.com/jledgi
Moms in NJ
(which has a similar law to the proposed MOTHERS
Act) were treated like criminals for seeking
help for PPD
http://www.uniteforlife.org/ppdcriminals.htm
Our original
press release with an addendum, which includes
references to medical studies on dangers,
including pregnancy dangers and suicide /
homicide dangers, toxicity dangers, and articles
on PPD alternatives, actual safely treatable
causes, and prevention:
http://www.uniteforlife.org/MOTHERpress.htm
A lack of
sufficient data to support the alleged safety of
breastfeeding while using psychiatric drugs
http://www.uniteforlife.org/breastfeeding.html
A decline in
suicides since the FDA Black Box Warning
http://www.uniteforlife.org/decline%20in%20sucicides.html
Lowest level
of suicides in 30 years as prescriptions for
antidepressants drop by half (England, Wales)
http://www.uniteforlife.org/englandwales.htm
A Swedish
study revealing that psychiatric drug use
preceded about 80% of all adult suicides
http://ahrp.blogspot.com/2008/03/antidepressants-linked-to-52-of.html
Anticonvulsant drugs get slapped with black box
warning for doubling suicides
http://www.uniteforlife.org/socalledmoodstabilizersdoublesuicide.htm
Adrenal
exhaustion as a cause of PPD (including
information about thyroid conditions and the
fact that antidepressants exacerbate adrenal
problems):
http://www.uniteforlife.org/adrenalppd.htm
Media
coverage of the NEJM analysis revealing the data
suppression and ineffectiveness of
antidepressants
http://www.uniteforlife.org/suppresseddata.htm
Flyer to use
for massive advertising against the bill and to
solicit petition signatures
http://www.uniteforlife.org/flyermom.htm
An outreach
letter that can be used for emails asking for
support and endorsements of our efforts against
this bill
http://www.uniteforlife.org/requestforhelp.htm
Amy Philo’s
YouTube Videos including her personal story of
Zoloft-induced psychosis and homicidal and
suicidal urges during the postpartum period:
http://www.youtube.com/watch?v=LQW23XCmOCw
http://www.youtube.com/watch?v=W4B8I_8wz6I
==================
Please read
these excerpts from emails and blogs that we
have found or received in the past few weeks:
================
“I was on
very low dose Desyrel for depression during
pregnancy. But when I got tired of being tired,
I took myself off. A year later they put me on
Prozac. I felt better, but began behaviors that
distressed me. They told me that I needed it. I
switched to Zoloft. Later to Paxil. Each time I
tried to get off of it, I had what I later
learned was withdrawal effects, but they told me
it was proof I needed it. Later, when I heard
someone tell my story about the withdrawal
effects, I took myself off cold turkey, knowing
that I would get through it. And I did. During
these years on SSRI's, I was diagnosed with Type
II Bipolar Disorder (mild mania). When I got off
of SSRI's those symptoms disappeared. My
relationship with my son was permanently damaged
by my behavior, and horrible 'legal' things
happened to me as the result of my drug induced
behavior. The psychiatric community denies this
is why, but recently, my doctor was looking for
something for my panic attacks and some
depression and said that she wouldn't put me
back on SSRI's because of the manic symptoms
they induced... this is the doctor, one of them,
who denied the SSRI's were causing my problems!
I still have panic attacks, but never had them
before these medications. I had depression, but
not these panic attacks...which now may be
something I'm going to have to deal with
ongoing.
I can't
believe what incredible suffering some
supposedly "human" beings can perpetrate on
other human beings...FOR PROFIT!!! It's a
disgusting legacy of a culture of greed and
indifference, and is the cause of U.S.
interference and imperialism...greed, power,
profit. They have no conscience, no shame...no
humanity!!
The damage to my life was great...particularly
to my relationship with my son, who has only
known me with my behavior on those drugs...so,
though we are close, and the relationship was
loving and protective, I did behave badly at
times. He has a lot of pain to deal with because
of it...and it affects our relationship. It's a
source of great pain, sorrow and shame for me. I
didn't get off these drugs until he was out of
the house at 18. He left before he graduated
from high school.
I worked with a young woman going through a
crisis, brand new mom... she was 3 months post
partum... something horrible happened and they
arrested her, took her away from her child...
she never got her back. She already had mental
problems, but what they did to her made it
worse.
Doctors and
law enforcement are lazy and
indifferent...really jaded... and they have
stopped caring. They rely on what they think
they know and what is expedient. So laws like
this will make it worse.”
– Lucy
=================
Excerpts from The Star-Ledger (Newark, New
Jersey)
December 9,
2007 Sunday
“Promised lifeline for new moms falls short
Postpartum depression law called a
disappointment so far
BYLINE: SUSAN K. LIVIO, STAR-LEDGER STAFF
…A `HORRIBLE'
RESPONSE
Maxine
Garcia of Sayreville says that when she asked
for help she got a response that left her
stunned. Police officers and rescue squad
workers arrived unannounced at her home last
year, an hour after she called the hotline to
say she was six months pregnant and "depressed
out of my mind." According to the police report,
Garcia threatened to hurt herself, but she
denies it. She and her two children were forced
to go to the emergency room. "I felt like I had
no rights," Garcia said. "I really just needed
someone to talk to."
Yolanda
Iyube of Franklin in Somerset County says she
confided to her gynecologist two years ago she
was consumed with scary thoughts about her baby
dying violently. Before she left the office, a
police-escorted social worker took her to the
emergency room. "They brought me in a police car
to the hospital. It was horrible - everyone was
looking at me like I had committed a crime."
Venis said
such responses can discourage women with
postpartum depression from seeking help.
...When the
law took effect, there was an initial reluctance
from physicians treating new mothers - a fear
that "we won't be able to discharge anyone from
the hospital," said Edward Wolf, vice chairman
of the Department of Obstetrics and Gynecology
at Saint Barnabas Medical Center in Livingston.
Wolf said
the law added responsibilities for obstetricians
already vulnerable to malpractice lawsuits. He
said there was a fear of "I am going to get this
thrown on my lap without help."”
===================
Excerpts from Julie’s blog (http://www.bigpharmavictim.blogspot.com/)
“Manie is 3 years old.
Was born with Transposition of the Great
Arteries.
Had a balloon procedure shortly after birth to
keep him alive.
Had open heart surgery at 1 week old.
Had 3 cardiac caths to correct problems with
collaterals.
Has had several coils put in his collaterals.
Has a leak in his valve.
Manie has to take medicine for high blood
pressure.
Manie has also suffered from acid reflux
Manie was on an adult dose of meds for acid
reflux for six months.
Because of the acid reflux Manie has bad teeth.
His baby teeth are ruined.
When Manie goes to the dentist he has to have
dental work done with out Novocaine or nitrous
oxide.
The reason why Manie was born with a congenital
heart defect was because of my ingestion of an
antidepressant while I was pregnant. I took
Paxil within the first three months that I was
pregnant with Manie. At the time that I was
pregnant with Manie Paxil was a class C drug.
Now Paxil is a class D drug.
What is a category D: Definite fetal risk, maybe
given in spite of risk if needed in
life-threatening conditions. What could be so
important to risk a unborn baby's life? If
something is life-threatening I would think a
person should be under supervision as not to
hurt them self or their unborn child. In Mosbys
Drug Reference Paxil is a category B drug in
2003. Now I ask when did Glaxo know about paxil
causing birth defects???????? Now that is a good
question isn't it.
This is what I have to say to any one who is
pregnant or could become pregnant. If you are
depressed get help indeed. However please think
about this... Wouldn't it be better to seek some
other kind of help for your depression? I have
been through having a child with a birth defect
and I will always be going through it. I can
never turn back the hands of time and not take
that pill. Unlike you I did not know. I did not
have a clue. Until recently I did not know why
Manie was born with a heart defect. I looked and
looked for a reason why and always came up with
nothing. Until one day I found out that it was
because I took paxil. The guilt I feel will
never go away even though it was not my fault.
If you think that you are depressed now wait
until your life is flipped upside down when your
baby is born with a horrible birth defect like
Manie was.
==========
Manie has three sisters and one brother. Manie
is number four out of five kids. Manie loves to
hunt frogs and go fishing. Manie loves being
outside in the summer time. I had a normal
pregnancy with Manie. I even had a couple of
ultrasounds done while I was pregnant with Manie.
There were no clues that Manie had a rare heart
defect. I had already 3 perfectly healthy kids
and did not expect for Manie to be any
different.
As soon as Manie was born he began to turn blue.
The more he cried the more he turned blue. Our
doctor did not know what was wrong with Manie.
The doctor thought that it might be his heart or
his lungs.
Manie was flown to a hospital an hour and a half
away from where we live. I had to stay at the
hospital where I had Manie. The doctors called
me when Manie arrived and told me Manie had
transposition of the great arteries.
I was told that Manie had to have a procedure
done to save his life. The doctors went through
the artery on the inside of Manie's right leg.
The doctors snaked a balloon all the way through
the artery to Manie's heart. Once the doctors
were in Manie's heart they blew the balloon up
and ripped a hole in Manie's heart.
In the days following the surgery Manie's leg
and foot started to turn a dark purple. The
doctors told us that Manie may have to have his
leg amputated because the procedure damaged the
artery in Manie's leg.
Right before Manie's open heart surgery the
doctors put Manie on blood thinners. Shortly
after putting Manie on blood thinners they
were able to detect a pulse in Manie's foot.
Manie kept his leg.
=======
(TGA means the aorta and pulmonary arteries
in the heart are switched. When a child is
born with TGA there is very little oxygen in
the blood. The aorta receives the
oxygen-poor blood from the right ventricle,
but it's carried back to the body without
receiving more oxygen. The pulmonary artery
receives the oxygen-rich blood from the left
ventricle but carries it back to the lungs.)
=======
Manie loves to go to a lake by our house and
hunt frogs and go fishing. Manie also likes
to go to the park. Manie really likes to go
to the mall and play video games. Manie also
loves to dance especially to 80s music.
=========
When he first started going to the dentist
at about a year old because his teeth were
going bad and this was before we knew that
he had been suffering with acid reflux I was
blamed for it then too. I was told his teeth
were bad because I was still nursing him and
I needed to stop. So I have learned that
they are just looking for someone to blame.
I take care of my kids teeth. If I did not
then why does Manie's older brother have
perfect teeth and never had any cavities at
all? I just took Manie's older brother and
one of his older sisters to the dentist two
weeks ago. Guess what no cavities and no
problems. Hmmm what does that tell ya? So it
looks like Manie is going back to the
dentist in four months and at that time the
student said "they will talk to me about
putting him under to have all his teeth done
at once." I am not going to worry about that
right now I guess. I will keep on brushing
and praying that his teeth will be fine.
Manie made it through another dental
appointment and he is such a brave little
boy. I am so proud of him. This was just a
small insite into what Manie has to go
through. I wish I could take it all away and
make it better for him, but all I can do is
be there to love him.
========
…I do not care if it is 1% or a 100% of
women who take antidepressants that have
children born with birth defects the
suffering these babies have to go through is
too much. What woman would want to be that
1%? No one would, but they are saying take
the chance if you need too. GSK PLEASE stop
funding these studies and misleading woman.
Have you not done enough already. Except the
fact that you did wrong instead of trying to
belittle what my son and others have gone
through with these studies that say the risk
is so small. You are just trying to take
some of the heat off. GSK it seems to me you
have just made a big ass out of your self
again. I for one am not fooled by your
attempts to lessen what you have done. I
only hope that other women listen to the
whole story instead of just the headlines
and realize that antidepressants do cause
birth defects.
========
Big Pharma has been abusing people for
profits. This problem has been going on
since the begining of Big pharma. We need to
let "them" know that we are not going to
tolerate this any longer. We need to let the
government know that we demand something be
done. Why is Big Pharma allowed to hurt
people and get away with it. You have seen
the pictures of Manie when he was born and
you have heard me talk about the torture he
has to deal with, if someone is responsible
for his pain then why are they not punished?
Do not think for a minute that something
like this could not happen to you. Do
something about it before it does. Write to
your Senators let them know how you feel
about what big pharma has done in the past.
Encourage them to do something about this.
It is clear that big pharma does not care
about anyone. If they are willing to hurt
babies their is nothing that is going to
stop them. I say do some research on big
pharma. Type big pharma into a search engine
and see what comes up. Find out for yourself
what has been going on that you do not know
about. Be aware of what is going on take
care of yourself because no one is looking
out for you, but you.
=======
What does this mean for the future of our
family minivacation tradition? It looks like
Manie will be stuck riding the Infant Ocean
for the rest of his life or sitting and
watching as everyone else has fun on the
rides. It might be that the family will just
have to find a new family tradition. What
happens when Manie becomes a teenager and
wants to go with his friends? Will he ride
the rides anyways and risk it all just to
find out what it feels like to ride the
Mixer or the Dragon.
========
This vacation has left me thinking what else
is there that Manie can't do because of his
heart problems? I want to be able to tell
Manie that he can do anything he wants and
to never let his heart problems stop him,
but in this case I can't say that because
there are just somethings he will not be
aloud to do. I hate using the word can't
when it comes to any of my children. I
always want my children to know they can do
anything if they want it bad enough. I guess
GSK has taken that away from Manie too.
========
I could not believe what I was reading this
morning on seroxatsecrets blog. You have to
be kidding me I thought. Apparently GSK has
bought Reliant a pharmaceutical company that
makes HEART MEDS! Is it me or does something
smell a little fishy here. Go to
http://seroxatsecrets.wordpress.com/2007/11/21/oh-the-irony-of-it-glaxo-buys-reliant-pharma-for-165billion/to
read the post. Lets examine this situation.
My son and others like him were born with
HEART DEFECTS because of Paxil which came
from GSK. Now these kids that are growing up
with HEART CONDITIONS are going to need
HEART MEDS probably for the rest of there
life. Now GSK has bought a pharmaceutical
company that makes HEART MEDS. Isn't there a
law against profiting off of the tragedy
that you have caused? Does anyone know? If
you do please contact me and inform me. If
there is not a law against this there should
be. I am disgusted about this. I am
disgusted because the same company that
caused my son so much pain is now going to
probably profit from what they have done.
=========
One Thing That Comes With the Territory
It amazes me how stupid some things just
are. Like health insurance in America. Manie
has government health insurance, called
title 19. See here in America if you are
poor enough for your child to get title 19
then you must stay poor to continue getting
it. Manie's father and I are allowed
$3,000.00 dollars in assets. How it works is
we are allowed one car but if we have a
second car they count it as an asset. We are
allowed one house, which has to be the one
we live in. The extra car, anything else of
value, any income, and money in the bank can
not ever exceed $3,000.00 or Manie will lose
his health insurance. Manie is only allowed
$2,000.00 in assets total. Now lets talk
about health insurance. Manie can not go to
the proper hospital because the health
insurance in most cases will not cover out
of state hospitals. When we have to take
Manie to the hospital for heart checkup
etc.. we have to make sure we have an O.K.
from our regular doctor first. Yeah like I
am going to be just sitting around one day
and think just for the hell of it I will go
get my kid a cardiac cath. Manie's
medication that he needs to keep him as
healthy as he can be will not be covered by
government insurance. Yet this same
government insurance will cover a man to go
on Viagra even if he has committed a sexual
crime. Does this make any sense to anyone?
What about private health insurance you
might ask. Ha Manie had private health
insurance through his fathers work when he
was born. Can anyone say PREEXISTING
CONDITION. Yep that's right just because he
had the heart defect when he was born it is
a preexisting condition and WA la they do
not have to pay for anything. If it was not
for government health insurance we would be
screwed so I am grateful for what we have. I
just don't understand why it works the way
it does and why Manie can not get the proper
care. If it seems like I am ungrateful for
what we have I am not. I am very grateful,
but I watch day after day as my son looks
worse and worse and wonder if there is
something wrong with him. See the hospital
he goes to can not find anything wrong,
besides the fact that he has a leak in his
valve, which was caused by the open heart
surgery. Last time I knew there was
something wrong this same hospital told me
Manie was fine and treated me like I was
crazy. Months later they found the
collateral's that had been growing off of
Manie's heart. I had been right all
along!(Not that I wanted to be, but a mother
knows when there is something wrong) I think
letting the collateral's go that long caused
more problems then what they want me to know
about. I just wanted to share a couple of
issues that arise when having a child with a
heart condition or any health problem. If
there is anyone out there who thinks they
are alone know that I am here and there are
others out there who understand.”